Last October, Celtic Whiskey Shop on Dawson Street ran a hugely successful Whiskey Live event in Dublin Castle.
(this is an article from the USA)
Down Syndrome Dublin need a qualified teacher for the Latch On programme, it would suit a retired teacher.Its for 10 hours per week on a Monday and Friday at the Mater Dei Institute in Clonliffe Road. The teacher will be assisted by two tutors and will be teaching 12 students with Down Syndrome the adult literacy programme (Latch On) Full training on the Latch On programme will be provided.
Reproduced from bloomberg.com
Aiming deep inside the brain, drugmakers are testing medicines that may improve learning in people with Down syndrome, an advance unimaginable 50 years ago when many children with the genetic condition were considered hopelessly disabled.
About 6,000 U.S. babies are born with Down syndrome each year. Most attend school, aided by programs designed to help them deal with their disabilities. Now Roche Holding AG (ROG) and Balance Therapeutics Inc., taking advantage of a research renaissance in brain science, are testing drugs in human trials that may pave the way toward a new era. The goal: Improve the ability of these children to remember and learn.
The Cabinet have decided not to request labour and fine gael TDs to vote down Finian McGrath's bill. Allowing it to proceed to the commitee stage. This is in large part down to the huge amount of lobbying that parents have undertaken.
Finian McGrath is introducing a bill on Friday 7th February to the Dail which if passed would give legal right for all children with Down Syndrome to resource hours. We strongly urge you to print out this letter and send it to all your local TDs by email or Fax
reproduced from irish examiner
Up to half of the country’s children with Down’s syndrome have lost their discretionary medical cards, and the group has been "disproportionately" hit by a recent clampdown, a leading advocacy group said.
Finian McGrath in a letter to the Times today, launches his Down Syndrome Equal Access Bill. Read the full text of the letter here
Tuesday - 20th July - Ruairi Quinn has refused to reclassify Down Syndrome as a low incidence disability for the allocation of resource hours, and referred back to the NCSE report. So basically, we'll have to wait until the working group has finished its deliberations and a plan is put in place and executed. Can our children afford to wait that long - no sorry Minister!, we're moving to plan B.
reproduced from special needs parents
The Special Needs Parents Association is calling all parents to attend a demonstration next Wednesday 26th June at 6pm, outside Leinster House, Kildare Street.
Yet again it is time to Fight Back!
We are really pleased to announce that a collaboration between the Dublin, Donegal branches, and the Down Syndrome Education Equality Advocates has resulted in the Chair person of the Dáil Education Subcommitee agreeing to a presentation by Prof Sue Buckley of Downs Ed International on the 11th September. Sue is one of the World's leading authorities on the subject of educating people with Down Syndrome.
Starting School 2013 & 2014
Patricia Griffin, education Officer with Down Syndrome Ireland, is looking for the numbers of children with Down Syndrome starting primary school in September 2013 and September 2014. This information will help in the campaign to get Down syndrome re-classified as a Low Incidence disorder and get more resources allocated to our children.
Please help us provide these numbers by filling out these short surveys
The AGM was at the weekend 8th June in Waterford.Thanks to the Waterford branch for their great hospitality. 22 delegates came from the Dublin Branch thank you to each and every one of you. Mary Doherty (Louth/Meath) was voted in as president, Fran Kane from Dubin as national secretary, and Des Mulhall from Laois as national treasurer. National council appointments (Cork - Liam Ahern, Donegal - Gina Grant, Dublin Sylvaine Ni Cheallachain, and Bernie Dixon, Risteard Pierce - Kerry, Kildare Gerry Doran, Louth/Meath - Jackie Gaines, and Terry Quinlan from Waterford.
Claire Leonard stepped down as president after years of esteemed service to DSI.
We'll post more on motions when the minutes are published.
The department's actions had "adversely affected" the capacity of children with the condition to engage to the fullest possible extent in mainstream primary schooling, according to a new report.
Ombudsman Emily Logan said there was "a potential for loss of opportunity given the lack of adequate consideration given to the cluster of needs for such children".
The ombudsman's criticism is in response to a complaint made by the mothers of two children with Down Syndrome attending mainstream primary schools.
Please find details below of a survey approved by Down Syndrome Ireland:
We are inviting you to take part in a research project that we are conducting with parents of individuals with Down Syndrome. The purpose of the study is to learn about factors that influence how families respond following the birth of a child with Down syndrome. This study is part of a larger cross-cultural study we will be conducting in at least 8 different countries (Brazil, Japan, Ireland, Italy, the Netherlands, Portugal, Thailand and the United States).
S&L Survey Results
The committee would like to thank everyone who took part in our S&L survey for children aged 0-18. The results were quiet shocking. It would seem that among our members, 75% of children are only receiving 6 sessions of S&L therapy a year. The committee are currently investigating several possibilities and we will inform members soon of plans to rectify this situation. Watch this space!!!