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Thursday, 31 January 2013 10:05

Survey Adaptation and Resiliency in Families of Individuals with Down Syndrome

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Please find details below of a survey approved by Down Syndrome Ireland:

We are inviting you to take part in a research project that we are conducting with parents of individuals with Down Syndrome. The purpose of the study is to learn about factors that influence how families respond following the birth of a child with Down syndrome. This study is part of a larger cross-cultural study we will be conducting in at least 8 different countries (Brazil, Japan, Ireland, Italy, the Netherlands, Portugal, Thailand and the United States).


Who can participate? If you are the parent of a child with Down syndrome, you are invited to participate. If you have a spouse or partner, he or she is also eligible to participate.

What will we ask you to do? We will ask you to complete a series of questionnaires (this should take approximately 20-30 minutes) and if you would like, we will interview you. Generally the interview will be a telephone interview. The interview will take approximately 60-90 minutes. After you talk with us and complete the online survey we may contact you a second time if we need to clarify any information with you.

The project has been approved the Cork Research Ethics Committee and by the institutional review board for human subjects research at University of North Carolina at Chapel Hill. If you agree to take part, all information you give will be confidential. No one except our research team will have access to your information.

If you wish to be involved in this research, please email Dr. Marcia Van Riper at This email address is being protected from spambots. You need JavaScript enabled to view it. or telephone her at (021) 4901467 or email Ms.Maria Caples at This email address is being protected from spambots. You need JavaScript enabled to view it. or telephone her at (021) 4901515 .

You also have the option of using one of the links below to access the survey directly (there is one link for mothers and one link for fathers – the surveys are exactly the same but if two people use the same computer to complete the survey, they need to use different links). If you agree to be interviewed, we will arrange to do the interview at a time that is convenient for you.

Link for mothers: https://www.surveymonkey.com/s/DDZYHP6

Link for fathers: https://www.surveymonkey.com/s/DY87C55

Many thanks for your kind consideration,


Dr. Marcia Van Riper, Professor and Chair, Family Health Division

President International Family Nursing Association

University of North Carolina at Chapel Hill

Fulbright Scholar Ireland 2012-2013.

Read 1686 times Last modified on Friday, 20 June 2014 13:16

Down Syndrome Dublin
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t: 01 902 2989
The Dublin Branch of Down Syndrome Ireland - CHY 6064

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