Who can participate? If you are the parent of a child with Down syndrome, you are invited to participate. If you have a spouse or partner, he or she is also eligible to participate.
What will we ask you to do? We will ask you to complete a series of questionnaires (this should take approximately 20-30 minutes) and if you would like, we will interview you. Generally the interview will be a telephone interview. The interview will take approximately 60-90 minutes. After you talk with us and complete the online survey we may contact you a second time if we need to clarify any information with you.
The project has been approved the Cork Research Ethics Committee and by the institutional review board for human subjects research at University of North Carolina at Chapel Hill. If you agree to take part, all information you give will be confidential. No one except our research team will have access to your information.
You also have the option of using one of the links below to access the survey directly (there is one link for mothers and one link for fathers – the surveys are exactly the same but if two people use the same computer to complete the survey, they need to use different links). If you agree to be interviewed, we will arrange to do the interview at a time that is convenient for you.
Link for mothers: https://www.surveymonkey.com/s/DDZYHP6
Link for fathers: https://www.surveymonkey.com/s/DY87C55
Many thanks for your kind consideration,
Dr. Marcia Van Riper, Professor and Chair, Family Health Division
President International Family Nursing Association
University of North Carolina at Chapel Hill
Fulbright Scholar Ireland 2012-2013.